Retts

Rett Syndrome: A symptom complex only observed in girls. The child develops normally for 6 to 12 months, and then the disease manifests in the age 6 months to 4 years. It is a progressive neurodevelopmental disorder characterised by acquired microcephaly, severe dementia, autism, purposeless hand movements, characteristic hand-wringing stereotypy, and jerky ataxia of the trunk. Hypotonia (loss of muscle tone) is usually the first symptom. Inheritance is probably X-linked dominant with lethality in the hemizygous males. The syndrome affects approximately 1 in every 10,000-15,000 live female births. The gene causing the disorder has now been identified.

bright eyes

sweet smile

clasped hands

unique style

special child

secret mind

loving heart

one of a kind

so we thought

but 'tis not true

now we find she is one of a few

I'm learning more about G everyday; she's so special to me, brighter than others would assume. Those eyes bear into mine, questioning, answering. I long to know what toughts linger in her mind. If only I knew G, we'd be inseperable.

JET is such a fireball grasping you for just one seconding and wizing off to a new adventure.

TNT grows with each day. Currently exploring the sounds and blurbs her mouth can make, mimicking mine, scooting backwards, standing nearly on our own. Perhaps we will walk before we crawl.